Experimental State Health Program May Hurt Medically Fragile Children, Including Me

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AutoInsuranceMM.Info – Low income insurance – Experimental State Health Program May Hurt Medically Fragile Children, Including Me

“Change is extremely difficult, and sometimes even fatal, for children like us with special health care needs. Like many who are experiencing this transition, I am struggling, too,” writes the author.  Photo: istockphoto.com

I was born with a rare genetic disorder, and have seen the same specialists for nearly all of my life.

Now, because of changes to the state’s health program for children with chronic medical conditions, I will likely need to change doctors. For most patients, changing doctors is time consuming but manageable. But for medically fragile children like me, changing doctors can be life threatening.

My two hearing specialists have expressed reluctance to participate in the new health program, called the Whole Child Model. I will likely be forced to find a new and unfamiliar ear, nose and throat doctor in an already overburdened provider network. Though I have acquired a new audiologist, he is twice as far away and timely access is an issue. I believe I will be unable to see my neurologist after the continuity of care requirement is met unless I can prove it is medically necessary—under the CCS program, I would have been allowed to see him until I was 21.  I’m sure I’m not the only one experiencing these changes.